NYC Child Becomes First Patient Treated With Gene Therapy for Cockayne Syndrome
FOR IMMEDIATE RELEASE Contact: Jo Kaur, jo.kaur@riaanresearch.org NYC Child Becomes First Patient Treated With Gene Therapy for Cockayne Syndrome (June 9, 2026) — Riaan Research Initiative (RRI), a rare disease patient advocacy organization based in New York City, announced that 6-year-old Riaan Singh Digeorge, a Queens resident, has become the first patient to receive an experimental gene […]
